My Thoughts About National Previvor Day
For the last three years, I’ve been completely immersed in the world of previvors. I’ve spent hours upon hours listening to the stories of Lisa Marton, Mayde Wiener, Amy Rosenthal, Rori Clark, and Suzanne Citere which were heart-breaking and moving, but also inspirational and uplifting. I’ve attended several FORCE conferences, where I met women who were desperate to learn about their risk and utterly confused about what to do about. I spoken with remarkable women like Sue Friedman and Lindsay Avner who truly have given previvors tremendous resources as well as outlets to share their fears and concerns. (Resources and outlets that, until recently, didn’t exist.) I’ve interviewed dozens of medical experts who said that the options need to get even better for previvors, and their hope that the tide would soon change.
Well, it looks like it just might.
The House of Representatives just voted in favor of declaring the last week of September “National Hereditary Breast and Ovarian Cancer Week.” And the last Wednesday of the month? National Previvor Day! This is such thrilling news for the previvor community. By bringing previvors into the forefront on such a national level, researchers will likely start focusing more of their time, effort, and financial resources on finding ways to help high-risk women fight cancer before it strikes.
By having a National Previvor Day, it’s as though government has said to previvors, “We hear you, we recognize you, and we take your concerns seriously.” And if it weren’t for Representative Debbie Wasserman Schultz, FORCE, Bright Pink, and the Young Survival Coalition, this would have never happened. They couldn’t receive enough thanks. I am so happy for previvors. Your day has come!
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My wife Annmarie is also a previvor who has had all her surgeries plus several more due to having a blood condition (Factor V Leiden) and complication with gastric bypass. In between healing from those surgeries, she’s a professional recording artist who has released several CDs. One of the singles she’s released is called “We Are A FORCE.” It’s a powerful song about empowerment. You can read about it at http://annmariesings.com/force.html. The FORCE organization has placed her song on their website (http://www.facingourrisk.org/how_to_help/campaigns/raise_your_voice.php), but it needs much more attention than it’s getting in order to generate any funds for FORCE. FIFTY percent of all downloads goes to FORCE. If you feel compelled to share this information on your website, please do. Thanks.
There are hundreds of thousands of other previvors as well, with other hereditary cancers–and who also have breast cancers…
Visit us at http://www.lynchcancers.com and we’d love to speak with you.
Previvorship is not solely limited to women and breast and ovarian cancer and our previvors are so very grateful to be among the lucky to be diagnosed.
Warm regards,
Team LSI